DO YOU THINK YOU MIGHT HAVE LGMD2I/R9?
You could receive genetic testing
- Click here for more for information regarding the Lantern Project’s FREE genetic testing program
- Click here for more information about genetic testing through Invitae
HAVE YOU BEEN DIAGNOSED WITH LGMD2I/R9?
There may be a clinical trial available for you or your loved one
- CureLGMD2i Foundation works with myTomorrows to support people living with limb girdle muscular dystrophy in their journey to find clinical trial options and next steps
- Click here to explore trial options
GET REGISTERED!
If you have received a diagnosis of LGMD2I/R9 or a related congenital muscular dystrophy, please get registered. It is imperative that we have as many patients registered as possible in order to get scientific research projects funded and therefore expedite a successful treatment for this disease. Click on the links below to get registered with the Global FKRP Registry AND the Congenital Muscular Dystrophy International Registry (CMDIR).
SOCIAL MEDIA
Make sure to check us out on social media platforms for the most up-to-date news!
OUR PARTNERS
Thank you to the LGMD2i Research Fund and all of our partners with whom we have been working to collaborate our efforts in supporting research for the dystroglycanopathies. We are grateful to have you all fighting this battle with us – together we will find a way to conquer LGMD2I/R9.
BUILDING AWARENESS IN THE LGMD COMMUNITY
Join us for our annual LGMD Awareness Day! Carol Abraham has done an excellent job of spearheading a consortium of many different Limb Girdle groups coming together to build awareness of this rare disease. Check out the LGMD Awareness website and join in celebrating with us on September 30th!
Lacey Woods has created a wonderful online presence for the LGMD2i Community. Her Facebook page is a great resource for those who are diagnosed with LGMD2i. Please consider joining the group by clicking on the link above.