Limb Girdle Muscular Dystrophy Type 2I/R9 (LGMD2I/R9) is a progressively debilitating disease that causes profound muscle wasting and weakness, mainly in the shoulder and hip areas. This is an ultra rare form of Muscular Dystrophy that can result in cardiovascular, respiratory and overall mobility challenges. To date, the CureLGMD2i Foundation has provided over $1,120,000 to research, advocacy and awareness programs focused on LGMD2I/R9.

MISSION

Providing Advocacy, Spreading Awareness & Supporting Scientific Research and Drug Development to Find a Cure for Limb Girdle Muscular Dystrophy 2I/R9

VISION

Our vision is to pioneer a future where every individual affected by Limb Girdle Muscular Dystrophy Type 2I/R9 can be treated early and live a life unencumbered by its challenges. By relentlessly pursuing innovative research, collaborative partnerships, and drug development, we envision accessible and effective treatments that slow or prevent the progression of the disease.