Events

We Celebrated LGMD Awareness Day Around the World During our Connecting for a Cure Event!

We are thrilled with the success of our first Connecting for a Cure event, celebrated on 9/30 – LGMD Awareness Day!  We held a hybrid event across multiple venues!  If you missed the virtual event, here is the link to watch!  Thanks to the wonderful generosity of our sponsors, donors and attendees, we raised over $150,000 to continue our work on spreading awareness, providing advocacy and supporting research and drug development for LGMD2i!

PLATINUM SPONSORS

GOLD SPONSORS:

SILVER SPONSORS:

THE COOK FAMILY

CONNIE OLSEN

CAL & CAROL RITTER

BRONZE SPONSORS:

THE DVORCHAK FAMILY

JEFF & JESSICA BASCIANO


The LGMD coalition hosted an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on Friday, September 23, 2022, for six limb-girdle muscular dystrophy (LGMD) subtypes: 2C (R5), 2D (R3), 2E (R4), 2F (R6),  2A (R1), and 2I (R9). You can still add your comments to make your voice heard!

We need your help to share your voice with the FDA!

Watch the event in it’s entirety and make your comments today by visiting www.lgmdpfdd.com!