We Celebrated LGMD Awareness Day During our Connecting for a Cure Event!

We are thrilled with the success of our first Connecting for a Cure event, celebrated on 9/30 – LGMD Awareness Day!  We held a hybrid event across multiple venues!  If you missed the virtual event, you can watch it here!  Thanks to the wonderful generosity of our sponsors, donors and attendees, we raised over $150,000 to continue our work on spreading awareness, providing advocacy and supporting research and drug development for LGMD2i!

PLATINUM SPONSORS

GOLD SPONSORS:

SILVER SPONSORS:

THE COOK FAMILY

CONNIE OLSEN

CAL & CAROL RITTER

BRONZE SPONSORS:

THE DVORCHAK FAMILY

JEFF & JESSICA BASCIANO

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The LGMD coalition hosted an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on Friday, September 23, 2022, for six limb-girdle muscular dystrophy (LGMD) subtypes: 2C (R5), 2D (R3), 2E (R4), 2F (R6),  2A (R1), and 2I (R9).

Watch the event in it’s entirety by visiting www.lgmdpfdd.com!

Coming Soon