On February 29th, join CureLGMD2i Foundation as we raise awareness for the 300 million people living with a rare disease, like LGMD2I/R9.Find out how you can Share Your Colors & Light Up For Rare at rarediseaseday.org We are honored to have been invited to attend The White House Rare Disease Forum. On March 1st, the FDA […]
Wellstone Muscular Dystrophy Specialized Research Center 2024 Dystroglycanopathies Patient & Family Conference Friday & Saturday, July 12 – 13, 2024 Hyatt Regency Coralville Hotel & Conference Center, IA
