On February 29th, join CureLGMD2i Foundation as we raise awareness for the 300 million people living with a rare disease, like LGMD2I/R9.
Find out how you can Share Your Colors & Light Up For Rare at rarediseaseday.org

We are honored to have been invited to attend The White House Rare Disease Forum.

On March 1st, the FDA will hold a virtual public meeting, dedicated to patients and providers:
Access the agenda and link here: FDA Rare Disease Day Virtual Public Meeting

Watch our documentary in honor of Rare Disease Day: